CLAN Indonesia Homepage

Welcome!

Thanks to an email introduction from the CARES Foundation in September 2006, CLAN was able to help caring health professionals in East Java secure emergency supplies of hydrocortisone and fludrocortisone for their small group of CAH patients. Neither medication is registered for sale in Indonesia, and access is variable at best.

In the longer term, CLAN is committed to the ongoing support of these families, as well as connecting with other doctors and CAH families from around Indonesia. At the recent APPES conference in Thailand, CLAN was very pleased to meet with several Paediatric Endocrinologists from Jakarta, and we hope to build on these relationships in the future.

Until recently, there has been no information available to families on CAH in Bahasa language, but this situation is rapidly changing! The team at Surabaya have recently translated some information and generously shared it for wider viewing on CLAN's web-site, in the hope it may help other Indonesian families. Likewise, doctors in Jakarta are currently working on a translation of Prof Garry Warne's booklet "Your Child With Congenital Adrenal Hyperplasia", and we will endeavour to link this from the Indonesian web-page in the near future also.

On June 13th, 2007 IKAHAK (Ikatan Keluarga Hiperplasia Adrenal Kongenital), the first CAH Family Club in Indonesia was established. Six families attended the inaugural meeting at Dr Soetomo Hospital in Surabaya. IKAHAK welcomes contact from all CAH families of Indonesia. Their email address is:

ikahak@gmail.com

The future for CAH families in Indonesia is looking brighter all the time, and sincere thanks must go to the fantastic Indonesian doctors around the country who are working so hard to effect change.